The last 5 months have been some of the toughest times that Jaime and I have ever had to endure. It really makes you appreciate the simple things of life. Life can get so busy and we often take for granted how blessed we are. Each day take time to count your blessings.
Learning and trusting God's plan has been hard. We have learned to take each day hour by hour. We would celebrate as we made it another hour. Several times I prayed that God would just take him home so that Roman wouldn't have to be in pain anymore. I just wanted his suffering to end. But God has had other plans. So many times we were told we just don't know if Roman will make it through the night. Roman showed us just how tough he is!! Ro survived 3 strokes and so far has reached most of his developmental milestones.
A week ago Jaime and I were told that Roman was going to have to go back on the vent. We called on all our prayer warriors to pray and praise God we made it another week avoiding the vent and keeping lactates down.
We never take Roman's first experiences for granted! For every holiday we have decorated his room. Taking him outside for the first time brought tears to my eyes. Roman eating a Popsicle and loving it melts our hearts. Each day watching Roman do normal baby stuff makes me tingle!!
We know that God has a plan for Roman's life. Roman's road will never be easy. It will always be tough. So many times I think "God why me!!!" but I know that he chose us for a reason! We needed to be on this journey. We may not know God's reasoning know but one day it will all make sense!
Please continue to pray for Roman and all his heart friends. Roman is 1 and 100!!! 1 and 100 babies born this year will be diagnosed with HLHS. We have met so many families affected by HLHS and other heart defects. These babies are a true inspiration.
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